In an era of Big Data and collaborative science, there has been a push for researchers, universities, and health systems to share their data. The massive datasets that result from sharing have the potential to unearth unique insights and make powerful predictions that will positively benefit human health and wellbeing. However, data sharing on a massive scale also introduces new ethical risks – including threats to privacy, challenges for informed consent, the commodification of personal information, and undermining the public trust in research.
In this panel we will discuss these risks as well as the role that universities like Ohio State should play in safeguarding individual rights and in equitably distributing the benefits and burdens of research.
Panelists:
- Kayte Spector-Bagdady (Department of Obstetrics & Gynecology and Chief of Research Ethics Service in the Center for Bioethics and Social Sciences in Medicine, University of Michigan Medical School)
- Timothy Huerta (Family Medicine, OSUMC; Chief Research Information Officer (CRIO) College of Medicine and Wexner Medical Center)
- Amanda Rinehart (Life Sciences Librarian, University Libraries)
- Efthimios Parasidis (Moritz College of Law and the College of Public Health, OSU; Professor of Law and Public Health)
If you require an accommodation such as live captioning or interpretation to participate in this event, please indicate this on the registration form or contact CARE GAA Lily Perkins (perkins.609@osu.edu). Requests made 10 days prior to the event will generally allow us to provide seamless access, but the university will make every effort to meet requests made after this date.
The Center for Ethics and Human Values' CARE program is co-sponsored by the Office of Research with support from the OSUMC Center for Bioethics and the College of Public Health.
Image credit: Getty images
